Muscular Dystrophy
Content provided by Self Help Clearinghouse
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Parent Project for Muscular Dystrophy Research, Inc.
International network. Founded 1994. Support for parents of children with Duchenne and Becker muscular dystrophy. To improve the treatment, quality of life and long-term outlook for all individuals affected by DMD through research, advocacy, education and compassion. Provides user-friendly website with online forums, scientific and legislative conferences, newsletters, information on newest diagnosis, standards of care and research strategies.
Write:
Parent Project for MD Research
158 Linwood Plaza
Fort Lee, NJ 07024
Voice: 1-800-714-5437 or 201-944-9985
Fax: 201-944-9987
Website: http://www.parentprojectmd.org
E-mail: info@parentprojectmd.org
Verified: 10/16/2006
S.M.D.I. Int'l (Society for Muscular Dystrophy Information)
International network. Founded 1983. Purpose is to share and encourage the exchange of non-technical, neuromuscular and disability-related information. Referrals to support groups via networking website.
Write:
SMDI International
P.O. Box 479
Bridgewater, NS, B4V 2X6 Canada
Voice: 902-685-3962 (voice/fax)
Website: http://www.societyneuromuscularinfo.org
E-mail: smdi_intl@mail_auracom.com
Verified: 11/16/2006
Muscular Dystrophy Association
National. 200+ chapters. Founded 1950. Provides comprehensive medical services to persons with neuromuscular disease. Supports research into the causes, cures and treatments of neuromuscular disorders. Support programs include self-help groups, phone friends, pen pals and scheduled online chat sessions.
Write:
Muscular Dystrophy Association
3300 E. Sunrise Dr.
Tucson, AZ 85718-3299
Voice: 1-800-572-1717
Fax: 520-529-5454
Website: http://www.mda.org
E-mail: mda@mdausa.org
Verified: 5/2/2007
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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Copyright © 2007 American Self-Help Group Clearinghouse. All rights reserved.
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Copyright © 2006 American Self-Help Group Clearinghouse. All rights reserved.
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